Health/Disability Related Support Groups | The Marfan Foundation
Provides information and support for people with Marfan syndrome and related connective tissue disorders. Also provides phone and online support groups. Hosts community walks and events, webinars, regional symposia, and a conference.
Categories
Last Assured
10/01/2024
Physical Address
22 Manhasset Ave, Port Washington, NY 11050-2023
Hours
Mon-Fri 9am-5pm Eastern Time
Website
https://www.marfan.org
Application process
Call or visit website
Fee
None for information; conference fees vary
Eligibility
People with Marfan syndrome, Loeys-Dietz syndrome, VEDS, and other genetic aortic and vascular conditions; and their family and friends
Languages
English
Service area
AZ
Agency info
The Marfan Foundation
Provides information and support for people with Marfan syndrome and related connective tissue disorders. Also provides phone and online support groups. Hosts community walks and events, webinars, regional symposia, and a conference.